Sleep

Kalee, Molly and Bradd are asleep. I'm about to go there myself soon. We had another big day. We met with the oncologist, then did the first round of chemotherapy. Molly did very well during the procedure.

When it was finishing up and when we got home she was fussy and it was really stressing Kalee out. Kalee hadn't been feeling well today too, so the whole ordeal this evening was very taxing on her. Bradd I were able to calm Molly by walking her and we were finally able to give her a bottle. Last I saw of her and Kalee, both were resting, and I think settling in for the night.

It's an emotional struggle. For me it feels like a set of things to do, to accomplish, all with many details to coordinate, and many people to work with to make sure all the wheels keep turning. For Kalee her number one concern is what Molly is experiencing. She has always been very empathic for both of our children. Maybe it's the maternal bond, maybe it's the level of communication that she has that goes beyond spoken word. I'm sure I'll never know, it is s very personal thing for her. I feel the pressure of dire consequences if I fail to perform, while kalee I think experiences the pain, frustration, and hardship that Molly is experiencing moment by moment.

If all goes well, and we can line things up with the airline, we may be able to travel home on Thursday. If not we maybe able to reschedule for Friday or Saturday. I'm not sure what the policy of the RMH is. I think I read something that asked families to move out as soon as their child was no longer receiving active treatment. But they may be understanding with the airline requirements and all. We're a little stuck because with the emergency medical flight option we received from United, we are required to fly the same route home, which is through Chicago. Flying home through Denver doesn't really seem like a good option either, because it would mean an extra 2 hours in the air, and a 4 hour flight doesn't sound like something that would go well.

Sarah, Michael and lil' Sammy stopped by the RMH tonight after we were done at CHOP. They came over while Molly was receiving chemo too. It was really great to have them around. Kalee and Sarah chatted for most of the 3 hours it took to administer the drugs. Who knew having your sister live 19 hours away would become such a blessing (well in some ways 19 hours away already was ;) ). RMH has been really great also. I'm gonna have to find a way to repay them some day.